Back in project management mode, Wilson helped me with a chart to track what's been going on.
I realised I haven't seen any of my oncology team face to face since the end of April - and they would not recognise me. I've had a series of partial seizures every week since the new chemo started, no amount of steroids have relieved my dysphasia or lack of motor skills. (I've blogged enough about steroid wars, but that is what they were supposed to relieve, so I've been popping them in enormous amounts and paid the price).
Thanks to a French doctor and my own MRI scans, it turns out, not only has my brain swelled, but the cystic lesion returned. We might have killed off a bit of the tuna, but that creates a bit of swelling too, which creates pressure.
Long story short:
I'm back in the John Radcliffe Hospital, to be operated on Monday to drain the cyst and insert a reservoir so we can do it again if necessary.
(always knew I had redundant liquid in there somewhere)
That should relieve the pressure that is stopping me from speaking and able to use my hand properly.
Then, I'm onto the plan to get off the steroids, work out what's going on with the tuna, restart the chemo and get on with stuff.
More soon!
